To create a world where myodesopsia is recognised, understood, and easily treated.
We support myodesopsia sufferers by raising awareness and understanding internationally whilst sponsoring research and collaboration to accelerate the development of better treatment options.
If this is your experience, we represent you.
Have you been told this is a 'benign' condition, that you will get used to it, or that it will improve over time? This type of advice is in direct contradiction to the experience of many people who suffer from these symptoms - which can occur on a spectrum of severity and can have profound impacts on quality of life. Professional understanding of myodesopsia has begun to change - and Myodesopsia International exists to bridge the gap been patients and doctors, accelerating change where it's needed most.
Who are we?
Established in 2023, Myodesopsia International is a registered charity in England and Wales (#1202141). We exist to ensure that the voices of myodesopsia patients are represented in the medical and research communities, to provide accurate information, and to help patients better understand their condition and get the best possible care. We are now accepting associate members from the U.K.