Research
A key part of the mission of Myodesopsia International is to sponsor research and facilitate collaborations that can accelerate the development of safer, more effective, and more accessible treatment options.
To that end, one of our priorities is to partner with donors to establish a patient-led research fund, from which the charity can make grants to commission and support high-impact studies on myodesopsia. Projects receiving funding will be identified and vetted by a panel of patient reviewers working in consultation with an advisory board of medical and scientific experts.
Those living with myodesopsia have unique perspectives on the condition that can help to generate new hypotheses or directions for inquiry, and our goal is to empower them to drive the research agenda in a way that has not been possible before.
As we work toward securing the financial resources we will need to make this vision a reality, we are actively striving to advance research in other ways. Below is an overview of our past and current efforts on this front.
Myodesopsia Prevalence Study
Collaboration involving researchers from the Indiana University School of Medicine and Geffen School of Medicine at UCLA, as well as a current trustee of Myodesopsia International, that aims to quantify the prevalence and economic burden of myodesopsia among adults in the United States.
Article for Patient-Generated Hypotheses Journal
Contribution by a Myodesopsia International trustee to a publication of the Patient-Led Research Collaborative (PLRC), which works "to facilitate patient-led and patient-involved research into Long COVID and associated conditions while following rigorous research methodology." Explores possible links between myodesopsia and other chronic conditions and suggests directions for future study. Published alongside results of an informal online poll on the same subject conducted by PLRC.